Sunday, September 30, 2012
Saturday, September 29, 2012
The doctors continue to do blood gases and overall his numbers were better today. To be more specific his PH stayed within the 7.2 area, Carbon Dioxide was high ranging from 62 - 75 and his acid level was much better going anywhere from a 0 to a -1. They started him at 80% oxygen today and they weened him down to about 40% then back up again to 50% oxygen. It's a constant battle of adjusting to what he needs.
They ordered another chest X-ray tonight, he gets one daily already, to double check his lungs. They still have fluid and still are hazy due to PIE.
Hudson has definitely made it difficult on the nurses and respiratory therapists that are assigned to him. Depending how he is positioned will determine how his oxygen level is. Ideally they want it between 91-96. He was on his belly and would range from 86 - 90. They did everything they could to keep him there and raise his oxygen levels, well the little guy wanted to lay on his back and his levels instantly went up. I guess we all have our favorite sleeping positions, why would he be any different.
To give you an example of a ventilator adjustment they went from 360 breaths a minute to 300 breaths a minute of the JET ventilator. I haven't quite figured out the logic behind it but I'm working on it. There are so many components to the JET that I don't know if I can fully understand it before I go back and teach high school math again. I do know that PIP refers to pressure he is getting from the machine. This is similar to the pressure of the air at higher altitudes versus at sea level. It's different and different pressures affect the lungs differently.
Friday, September 28, 2012
They did a chest X-ray this morning and found fluid in his lungs. They decreased the amount of fluid he was receiving through an IV and increased some of his vent settings, did another X-ray and the fluid was GONE!! However, the PIE was back. Time to re-adjust the vent settings yet again. His blood gas numbers indicate he is having trouble getting rid of the CO2 and thus his overall PH level is low. "Adjust those vent settings doc!!!" It's a game of what is Hudson going to do and how are we going to react to it. They are also doing a blood culture and thinking it may be an infection of some kind. The antibiotics he is on are general in nature. If he is found to have an infection, they will treat it with a more specific type of antibiotic. We are waiting on those results.
Overall his swelling is much better as he is doing a great job of urinating it out (this is awesome!). There is one spot on his head that is still holding extra fluid, which is expected due to the way he is positioned and will eventually go away. Sticking with his head, they did another brain ultrasound and found 0 bleeding on the brain or IVH!!! Yay!! They do not expect to see any bleeding on the brain and if they do it will be a rare case.
He is starting to move more which is a sign he is doing better overall, however this is bad because he will want to start fighting the vent - that is bad. To help him, they will sedate him so his lungs are working with the JET ventilator instead of against it.
He is still being fed through an IV and has not had his first official stool yet. Still waiting on that to occur as well. His overall color looks good. Enjoy the pictures.
Wednesday, September 26, 2012
We spoke to Doctor Allen, the head of the NICU, this evening and she was pleased with his progress. It's slow going but slow going is good. They do not want anything to happen fast. She said how Hudson has lost weight since yesterday. We asked her if that's bad and she said no because he is getting rid of the excess fluids in his body from the swelling as a result of the surgery. We like Dr. Allen, she is very down to earth and great at what she does.
Enjoy some pictures from today, mainly of Kim doing hands-on care. She's great at it, Hudson even peed on her while she changed his diaper.
Tuesday, September 25, 2012
Monday, September 24, 2012
The surgery was successful and I will attempt to explain everything they did. First, they gave him a bath in sanitizing beta-something. Then he got put on anesthesia and the surgeons removed his umbilical vein central line. Next, they removed his drain and increased his incision from his lower right stomach to underneath the belly button. Once they did that they were able to examine his whole intestine. At first, they could not find a hole. So they created a hole in the intestine and flushed saline solution both ways (up and down) to see if any leakage occurred. This reminded me of how I found the 7 or 8 water line breaks in my house a few years ago, turn on the water and watch for leaking water.
They found the hole (it was hidden) and removed that section of intestine. They were able to attach the upper part of the intestine to the surface of his skin and create an ostomy (a place for a bag to collect his stools). This will prove whether his intestines work or not. His first stool might happen in 3 to 4 days, so its still a waiting game!!
The surgeon was pleased with how everything went today and overall it appears to be an isolated event with no further damage to his intestine, only time will tell. Hudson did get more blood today, his 3rd transfusion in less than a week, and might have gotten too much because he is a bit red. See the picture below.
His labs were great again today and now the adventure begins again.
Sunday, September 23, 2012
The staff has been pumping Hudson with extra Oxygen and even a blood transfusion today to get him primed for surgery tomorrow. One question I have learned to ask is what if we wait, what are the consequences/benefits of doing it now vs. waiting a few days? The reason they want to do it tomorrow is the sooner they fix the intestine, the sooner he can get breast milk instead of an IV full of stuff. The surgeon also said the sooner they can do the surgery the less scar tissue will form and easier it will be on both Hudson and the surgeons. Kim and I agreed to it via a phone call this morning and tomorrow is the big day!!
It will be a rough go for him for the next week or so due in part to under-developed everything and a sick or weak immune system. The past few days he has been a boring patient, but tomorrow that will no longer be the case. Here's to hoping for a fast and healthy recovery. The sooner he can get Kim's milk the sooner he will be tasting what the nurses call .... liquid gold!!!!
Saturday, September 22, 2012
PH level #: Ideally they want this to be in the 7.2 realm and Hudson today has produced a 7.23 at 6 pm! Winning!!
Carbon Dioxide output: In a perfect world the doctors want this to be at 40 but in premies it is good to be at 50. Hudson's number.....50!! Winning!!!
Acidic level of his blood: In an ideal world this is at a 0. Hudson has been as high as -10, today he performed at a -3!!! Yesterday it was consistently around -6.
All of this is a great sign that he is getting better!!! The plan is still to have surgery on Monday because his numbers are solidly improving. I understand that and after all, its all about the numbers and constantly adjusting what you do based on those numbers. This is what I can call......DATA DRIVEN!!!!! If you are a teacher you will appreciate that. :-) They are testing him often and going back to improve the weak areas instantly.
He still has a partial collapsed right lung but over time it will re-inflate. They can't do too much right now due to his size and everything else that is going on.
Another positive note...Kim and I got to do hands-on care. This allowed us to take his temperature, change his diaper and move his oxygen monitor and blood pressure cuff from one foot to the other. It was the first time we got to do this and loved it!!!
The morning consisted of the usual doctor visits and nurse check-ups. We met with a social worker because I wanted to be proactive to discuss any financial questions I had and come to find out, I went to DePauw with both her and her husband Small world and she remembered me [I wonder why... :-)] Any way, she did a great job of answering all of inquiries and was pretty awesome. As soon as she left the pharmacy came up and said that we can put our prescriptions in then pick them up later, so we went ahead with that. As soon as she left the lactation consultant arrived to check on us and I mentioned to her that I would like to shop from her "store". I ended up buying a pump, a hands free hold the pumping things for Kim so she doesn't have to hold them every time and a new nursing bra for Kim because she only had one to use. All in all, a good shopping trip and they saved us some money!!!
Then we ate lunch quickly but still had to see the nurses to get officially discharged, meet the birthing records person who did not come the day before which made me a little bit fussy to be honest. After all of that, which takes some time and some preliminary packing it was now around 2 pm and we still hadn't seen our son!! All of this adult stuff is tiring. We called over to check how he was doing a couple of times and the nurse would not be too specific on some of the tests he had done earlier such as a brain ultrasound and chest X-Ray. She said we needed to talk to the doctor.
When we got to Riley the doctor immediately came to talk to us and he had good news to share. Hudson did not have IVH or bleeding on the brain which premie babies typically do. They will do another scan when he is 10 days old to confirm but this could be a major win for Team Hudson! His lungs are continually improving, slowly. This is another good sign and his blood gasses are getting closer and closer to what they want. They shared some numbers with us and they were pretty bad the first 12 hours he was born. We were also informed the exploratory surgery that they wanted to do on Wednesday night is now scheduled for Monday because of his improvement with his lungs and blood gasses. When Monday.....they don't know because the OR team has to come to him, which means they need a significant amount of time to relocate all of their stuff to the NICU, perform surgery and move it back.
After the doctor left, a family support person talked us then a research assisant talked to us about including Hudson in a couple of clinical studies. Kim talked to her while I visted with my Grandma Murray and Aunt Cheryl that had stopped by to see him.
We needed to be back to University Hospital by 4 to officially get discharged and pack the car. I took 3 trips to the car with stuff, while Kim got a shot. Then we headed to Ronald McDonald's house. We checked in and were overwhelmed with how awesome this place is! We have our own room with a sink and share a bathroom with another room. There is a comunity kitchen that everyone can use. Some other awesome things that occured are a family came in to cook the entire house dinner and watch Lorax. The dinner was awesome, home cooked mashed potatos, corn, rolls, mac & cheese, green beans and ham along with chicken and grilled hot dogs!!! They family also brought in quarters for people to get a soda from the pop machine here, yes it is only $0.25. Save you pop tabs and give them to Ronald's house, it helps support all of the wonderful stuff going on here! We also had a Kiwanis group provide breakfast this morning. Yummy, it makes it a lot easier on us.
We are a couple of blocks away from Hudson and can walk there. We had a great day yesterday and as the doctor told us he was very pleased with is progress so far!! That a kid, keep on keeping on!! He held my pinky for at least 30 minutes last night, very precious. It's moments like this that I just want to take him out of the incubator and hold him, but we can't. This is hard on us but we know it is what is best for Hudson right now.
If you wish to send mail to us:
Ronald McDonald House
Attn: Ben and Kim Murray, Room 17
435 Limestone Street
Indianapolis, IN 46202-2819
Here's to another good day!!
Friday, September 21, 2012
Thursday, September 20, 2012
The surgeon said he is doing well based on his surgery last night. He has his "sunglasses on" because he is getting treated for jaundice. He doesn't have it yet but according to his blood work he is likely to get it so they are being proactive. They did tell us they know what is going on with him before he does!! I like that a lot!!
He had an stomach ultrasound this morning and we are awaiting the results. He is also due to have more blood work done at 3 to check his gas levels in his blood. At 6 pm tonight will be another chest X-ray. This will be his 4th chest X-ray to look at the lungs and see how they are doing with what is called PIE's. From my limited knowledge that is when the air sacs burst and now the air is outside the sacs on his lungs. They were not good yesterday but this morning at 6 am they showed improvement.
All in all, the theme of the day is he is stable and improving. They are going to do an ultrasound on the brain tomorrow to check for any bleeding that may be on the brain. Let's hope there isn't any.
Here is a picture of him today. :-)
I did miss the delivery but arrived in time to see him before the rushed him over to Riley. Initially he did not need a breathing tube however he got worse and they put him on a ventilator at Riley. Due to his stomach issue the doctors decided that he needed to have surgery to repair a torn intestine that was leaking into his stomach and causing stuff to be in places it shouldn't be. So, they started that at 9:30 pm, 9 hours old and already having surgery. The pediatric surgeons and neonatoligist came out about 20 minutes later and said they have a change in plan.
Hudson's lungs are not doing well and he is not strong enough for major surgery. So they are refocusing on improving his lungs and simply put a drain in his belly and rinsed out the inside to temporarily relieve any pressure and drain what needs drained. The doctors did find baby poop in his belly and took that out. He is doing well and we are about to go over and see him soon.
Hudson is hooked up to several monitors including: an oxygen monitor, blood pressure monitor, heart monitor, feeding tube, breathing tube, umbilical cord catheter in the vein and now a drain in his stomach. All of that for a 2 pound baby.
One note, when they did surgery on his last night on him the OR team came to him in the NICU. It was an army walking in with all of the equipment, very overwhelming and information overload.
Monday, September 17, 2012
2. Did you know there is a "cupcake truck" that parks on iupui's campus? I've been on an obsession with cupcakes lately...so Friday night my parents bring me cookies from JoyAnn's bakery in Richmond and then cupcakes from the grocery. Needless to say...I'm surprised there are any left, but I rationed so I could have some through the rest of the week.
3. My sister, Lisa came to see me Friday night:) She works in the building right next to the hospital I'm in...she told me she was sorry she hadn't been to see me earlier...but she forgets I'm here until after she's already on the interstate headed home. HELLO!!! How could you forget about me?! KIKI!!! It's okay, I'll remind her daily where I am now...just so she doesn't forget:)
4. Ben and I ended up taking 3, yes 3, walks this weekend!!! It was so nice to get fresh air and just soak in the sun! I guess I should mention, Ben was doing the walking and pushing...me in the wheelchair. He got his exercise. Thankfully he got me back to my room in one piece every time:) He enjoyed showing me all of the different places, shortcuts, etc that he's found. He took be around Riley, that building is massive! We stalked the building that my sister Lisa works in...ok, it's really hard not to stalk because it is the building right next door on Michigan!
5. Friday night I was about to go crazy on the people standing outside my room. 10:30pm and the "guys" had stepped outside so that the Mom could feed the baby. Loud and obnoxious...seriously...some people are trying to rest! Thankfully for them I was being monitored so I was unable to get out of bed and say anything.
6. Benny and I had a date night Saturday! We rented Cars2 from the redbox downstairs and room service from the cafeteria. It was probably one of my most memorable dates with Ben. He was glued to the tv and laughed so hard! I asked his rating at the end...not as good as Cars and he gave it a 6. I would have never guessed that score from him.
7. Friday night...had a room full! It was a little overwhelming at first. Both my sisters and my parents and then me and Benny! And then we had Arni's, cupcakes and cookies...it was my dream come true! I'm such an eat sista!
8. Hudson was his stubborn self this weekend...and made the nurses chase him! So for two of his monitorings I had to be hooked up for an additional hour for them to get a good solid strip for the doctors.
9. And of course it was a football weekend in 2748. Colts pulled off a win...I'll admit I was a bit shocked because they didn't play that well. My Sunday nurse, knows NOTHING about football and would ask what was going on each time she was in the room. I was amused...Ben was not. She was a sweetheart, but clueless about sports! She said I know what a touchdown is!
10. Had a few friends stop in over the weekend, it was so good to see familiar faces!
Drum roll please........don't be too jealous!
Friday, September 14, 2012
Thursday, September 13, 2012
Tuesday, September 11, 2012
Monday, September 10, 2012
Sunday, September 9, 2012
Besides that, there really isn't much to report. This is a good thing. Every day is different and we'll see what tomorrow brings.
To think where we were a month ago and with talk about possible miscarriage, fluid in the baby's belly, calcification on the heart, you'll be lucky to make it to 24 weeks and so on has me proud of my little man for fixing himself of the fluid in his belly along with his strong heart. The doctors are a little amazed that he is still incubating inside Kim. Let's continue to amaze them Hudson.
Saturday, September 8, 2012
Friday, September 7, 2012
Due to this, labor could occur at any point and be rather quick due to the lack of contractions and the size of the baby. The doctors have told us they have been able to keep patients who are 3 cm dilated that way without increasing the dilation for several weeks. However, there is no set way to do this as it varies on a case by case basis. We are hoping Kim stays at 3 cm for several more weeks.
This is not much of an update in part due to an uneventful day. As I write this it is storming outside in Indy, rather badly and every time it thunders Hudson kicks. Kim says he doesn't like storms. Hudson is rather famous for moving away from the monitors and giving the nurses a difficult time to pick up his heart rate. He also will kick the monitors that are on Kim's stomach. We are lucky that we get to hear his heart rate all day and night long.
On other news, I did go on another short walk today and of course, only got semi-lost but quickly found my way back. Maybe my next walk I won't get lost. I was given a map just in case.
Thursday, September 6, 2012
Today was an uneventful day, which is good. The motto of today was, no news is good news. The one change that occurred was: they stopped the magnesium drip, which is a muscle relaxer for smooth muscles given through an IV to prevent the uterus from contracting.
As I write this, the only machines Kim is hooked up to is the saline drip to keep her hydrated and the monitor which monitors the baby's heartbeat and if Kim has any contractions. Both of these have been in our favor today, the baby's heartbeat has been solid and no contractions for over 24 hours!!! She is also on antibiotics given through the IV as a precaution due to the possibility of bacteria which is common among pre-term labors.
Kim is also on a soft muscle relaxer for her uterus to keep it calm and not get excited. So far it is working!!! Kim's symptoms have not changed and she is doing an excellent job of relaxing.
The staff we have dealt with have been nothing short of phenomenal! We couldn't have asked for a friendlier group of nurses that genuinely care about us along with being very knowledgeable to our needs as they routinely change. We believe we are in the right place to deal with any issue that may arise in the future due to professionalism and preparedness of the staff!
I wanted to get some fresh air this afternoon so I decided to go on a walk around IUPUI. I checked out my map and laid out a course of sightseeing. I saw the new Wishard Hospital being built, the White River, Ronald McDonald house (which is where we might stay if Baby M requires a lengthy stay at Riley), and of course Riley Hospital for Children. Upon attempting to make my way back to see Kim, I got lost and ended up in the back of the hospital where the loading dock and trash gets picked up at. So I turned around and somehow found our parking garage and made my way back. It was nice to get out and give Kim a break from me, I'm told I am really not that funny. I don't think so but they are also my jokes and the nurses laugh. The day shift nurse as she left for the evening said, "Boiler Up!" as she walked out the door and of course I repeated.
Wednesday, September 5, 2012
At the ultrasound the doctor could not find any fluid in the babies belly at all!!! She said there might be some fluid there but it is only 1 mm in thickness and the doctors do not consider that ascites at all!! This is a huge victory!! The doctor started to talk about releasing us to go home on Thursday or Friday then she checked the cervix. "Wow" is what I heard and the doctor then quickly said you are not going anywhere. We then switched rooms and are now back in the Labor & Delivery unit until the baby is born. Why you ask? Kim's cervix is 3 cm dilated but not in active labor. She is currently on a magnesium drip to relax the uterus' muscles to prevent any contractions from occurring. Kim is on hospital bed rest until delivery which could occur at any point. The plan is to get another steroid shot tomorrow morning and again continue to monitor her symptoms.
Baby Murray is doing great!!!! He is measuring at 1 lb 12 oz. He was breech during the ultrasound and sitting on my bladder. The tech did several scans and couldn't find any fluid on his belly...Ben and I were in shock! So thankful for our friends, family and perfect strangers that don't even know us that have continued to keep us in your thoughts and prayers. So that is our great news...but with any great news comes not so great news.
My cervix is NOT great! It is 0.27 cm from being nonexistence...which to put it as simply as the doctor put it...you could go into labor any day/any time. So Ben and I stayed at the doctors office until she had a chance to talk with our specialist. And from their discussion we were sent to University Hospital in Indy to be monitored. Babys heart beat has varied from 137 to 157...he is looking great! I will have another ultrasound in the afternoon and from there...hopefully know more;)
The other good news is that Kim is not in active delivery. We have been moved from the OB-ICU unit to the Postpartum unit (otherwise known as the recovery unit post labor & delivery). Kim has received a steroid shot this morning to increase the rate of development for Baby Murray's lungs. The plan is to give her another steroid shot in the morning on Thursday and wait. She will be monitored and on Friday the team of specialists, nurses, doctors, etc. will meet to discuss our case and decide on a course of action at that time.
We will update again after our ultrasound this afternoon. Thank you's go to everyone for everything they have done to support us.