Thursday, November 29, 2012
Tuesday, November 27, 2012
Hudson has been tolerating his food, so he got to go up to 4.5 ml per hour:)
I did Hudson's care today, gave him a bath and went to put MY favorite outfit on him...and he has gotten too long for it! What the heck?! Hudson thought it was funny! But then I got the last laugh because I put him in a cuter outfit...that isn't snap so he doesn't like it as much while getting dressed.
Hudson has a love hate relationship with Tuesday. He loves it because his Daddy comes to see him on Tuesday's, but he hates it because the EYE ladies come too. Well, poor kid had two eye exams today. He had his first one and the doctor said she wanted a second opinion just to be sure. Hour or so later, second opinion confirmed that Hudson needs to have laser treatment in both eyes for ROP. More than likely he'll have to have glasses down the road and he'll be near sighted. He has that laser treatment in the morning (Wednesday at 7a). They will give him "happy juice" so he won't feel a thing. He'll be worn out and will more than likely sleep the rest of the day. If you want to read more about ROP here's a link: http://www.nei.nih.gov/health/rop/rop.asp#7
Then Thursday he's got his contrast study scheduled. This is to make sure there is no other bowel issues before his next surgery.
And then Friday...he will hopefully get his 2 month shots. Something happens every day so they keep pushing it back...so Friday is the new goal for this to happen.
Hudson will be good and ready for the weekend!
And after 10 weeks of being in one spot, a new baby that will have several pieces of equipment needed Hudson's spot. So we were moved today...and talk about the filling in an oreo! It is different, and very tight...this next couple of weeks are going to be a lot closer.
Enjoy some Hudson time from today:)
Monday, November 26, 2012
Hudson had a wonderful day! We had our favorite (we have lots, but she was our first favorite) nurse today!!! During his rounds the doctor decided to go up to 2.2 ml per hour and turn his vapotherm down to 3 lpm! These are baby steps, but baby steps in the right direction!!!! During the afternoon rounds, his doctor asked me if I could have a pep talk with him so he handles his eye exam better this week. I think he'll do great! But, probably an extra prayer couldn't hurt for this matter. His eye exam is very stressful to him and we are looking at making baby steps forward:) It was also good to visit with his doctor that had him his first week, she was in amazement on where he is today! I had a proud Mommy moment showing him off to her.
Hudson has not only filled out...but he's gotten quite the reputation with the nurses. For amusement sake they love to come over and say "hi hudson" and they love to see his facial expressions. For some nurses he gives a full smile and almost a pretend this is what I look like laughing face. Others get a half smile and a few get a cry...hahaha. He has his own personality and he doesn't hide it!
Hudson is off to a better start this week! He went up and down with his weight over the weekend, but yesterday was 5lbs 15oz! And 17 3/4 inches long. He was on 1 ml per hour of food yesterday and tolerated it well! And I put the feeding tube in...he wasn't exactly happy with his momma at the time. So we shall see what today brings and adjustments his doctors want to make.
Have a Blessed Monday!
Sunday, November 25, 2012
Friday, November 23, 2012
Wednesday, November 21, 2012
This afternoon Hudson has a blood transfusion because his hematacrit was low, 28 I think. He tolerated that well. He also had a stomach xray done this afternoon which showed the air in his intestine had moved from its previous location, thus implying no blockage. Yay! However, it is enough to warrant a concern so they are monitoring that. He also had a chest xray done as well and while he had good expansion - 9 ribs expanded, he showed some haziness. So they upped the LPM's to 5.0. If his respiratory gets any worse, they will most likely move him back to the CPAP machine. I asked the reasoning and the NPP told me they can monitoring his breathing needs much better on the CPAP than the vapotherm. The vapotherm isn't the most accurate in terms of the settings on the machine and the expected outcome due to a variety of reasons, one of which is not having his nostrils sealed so that all of the air gets to his lungs, inevitably some of it escapes back out his nose thus losing so air. We'll wait and see how he does. The last I knew his oxygen needs were around 24%.
The surgeon came back in to dilate his stoma and some air came out, he does not believe there is an obstruction at this time.
I asked the NPP what could be the cause of the major episodes he has been having.
1. UTI has progressed into his blood - waiting on results, will take about 48 hours to know for sure.
2. His reserves are gone. The way I understood it is if your power goes out and you have a generator, it doesn't work either because you are out of fuel to run it. Because Hudson's reserves have been wiped out, he has nothing to fall back on when he decides to have a Brady or apnic episode. The reserves in these cases typically would kick start him back in the right direction but without them, he falls lower and lower.
3. Could be a variety of issues. This isn't comforting but at least they were honest.
I asked what the game plan was for tomorrow, Thanksgiving, and they did not know yet. They were going to see how he did overnight and go from there. That's the Hudson we know and love, not letting anyone plan for him.
He did get weighed today, 5 pounds and 11 ounces. He is still gaining weight, this is good. Since his blood transfusion he has not had any major episodes, lets keep our fingers crossed, all 5 or 10 of them, however many you may have. :-)
Thank you for your prayers! He is resting comfortable right now.
Tuesday, November 20, 2012
Hudson doesn't like plans. We know this, yet Ben and I were expecting surgery to happen next week. Well today, I found out that there is a "revised" plan for Hudson.
- Surgery: The doctor talked to the surgeon...surgeon said he didn't want to do Hudson's surgery until he was 3kilo (6lbs9oz) and he was off vapotherm and actually he preferred him to be on no respiratory assistance, which they are predicting to be around his due date. Mid December surgery. Because of the past few days the surgeon just wants him to get stronger.
- Feeding: The medical team said he wasn't ready for his feeds to be increased yet. So still, 4ml per hour today (which he was getting 16ml's per hour). They decided because they weren't increasing his feeds and it might be several days before we are back up to full feeds that they'd start TPN again. He has an iv in his right hand, but TPN is best in a picc line. Shortly after 2 today he got a picc line in and tpn to follow.
- Respiratory: The goal is to wean him.
Bradycardia: A heart rate less than 100, slower than normal for an infant.
Apnea: A pause in breathing that lasts for longer than 15-20 seconds.
lpm: liters per minute humidified oxygen delivered through the nose.
So needless to say...after learning our new plan and then Hudson's major episode I heard "well with preemies one step forward several steps backwards" I cannot stand that phrase! But we've learned it is so true!
Hudson weighs 5.5 lbs today!!!! (so for surgery he's got 1 lb 1 oz to go to meet that requirement)
This morning before everything happened, Hudson and I had a great time. We talked and had picture time, of course every day with Mommy is a picture day! I told him about Granny's birthday and we needed to take a special picture for her...well I'd like Granny to think he was focused on the camera...but he was more worried about what I was doing with his pacifier. He loves that thing!
As easy as it is to wish away the days to be home, I'm so thankful I have each day to learn Hudson's quirks! He is such a turkey! Very Blessed and Thankful. God is still very much present and listening to our prayers! Every day is a gift! My new motto is to Wake up and unwrap it like it is Christmas morning!!!
Have a great day!!!!
Monday, November 19, 2012
Ben and I came back to Lafayette today and shortly after noon got a call that Hudson had some changes, just to make us aware.
((Tuesday they started weaning him to formula and Friday was all formula) Friday he was really gassy and stinky...boy! He got fussy and started throwing up a bit here and there. Friday night gas so bad he popped his bag off his skin...twice! Which meant wardrobe changes...which he hates! Saturday more gas and just not happy with way more than usual output in his bag. More pukes.Saturday night another blowout!)
Today output wasn't as bad but gas was worse and more pukes and fussy...so belly xray ...showed lots of air in his intestines so they stopped food. He is on clear liquids through an iv and has a tube down his throat taking stuff off his stomach. Had another xray at 2p and was worse but 8p xray was improved! Another xray in morning and day shift will make adjustments to feed nutrients by feeding tube via breast milk or another formula or tpn through iv (stuff he was on before he started eating breast milk)...surgery was consulted and they put a catheter in his stomach to relieve air and check for a blockage. Needless to say it scared us enough to go talk face to face with the doctor especially since I got one story at noon and Ben got a slightly different one later in the day ...
Thanks for your continuous prayers! We appreciate them!
Lots of love!
Sunday, November 18, 2012
Picture with Hudson and his surgeon pre biopsy. Hudson's onesie said future M.D. his surgeon got a good laugh! Biopsy went great and should know results Monday,Tuesday at latest. The third picture is post biopsy ...he was exhausted!
Fourth picture is right after Ben kissed him.
Fifth picture is Ben doing Hudson's oral care.
Final two are just funny Hudson faces.